Does Everyone Have a Rare Disease?

Does everyone have a rare disease? At a recent meeting of the Rare Disease Research Network it was suggested that if you slice things thinly enough, every person has a rare disease. The idea ...

Rare Disease

Some Thoughts on the Kickoff Meeting for the Rare Disease Research Network

Last week I attended the kickoff meeting for the Rare Disease Research Network in Cambridge. Its purpose being to develop a strategy for designing and developing the network over the coming ...

Rare Disease

Developing the Rare Disease Research Network for more Patient-Centered Research Opportunities

Today I’m delighted to be involved with the Cambridge Rare Disease Network participating in a working group meeting to help develop their Rare Disease Research Network - which is building an ...

Disease Awareness, Rare Disease