Developing the Rare Disease Research Network for more Patient-Centered Research Opportunities
Developing the Rare Disease Research Network for more Patient-Centered Research Opportunities
Today I’m delighted to be involved with the Cambridge Rare Disease Network participating in a working group meeting to help develop their Rare Disease Research Network - which is building an ...
Disease Awareness, Rare Disease
Should we Piggyback on Health Awareness Months to Promote Relevant Clinical Trials?
Should we Piggyback on Health Awareness Months to Promote Relevant Clinical Trials?
There are lots of patient and condition-based organizations that promote health awareness in particular months or on specific days of the year. Today, for example, is ‘Wear it Gold’ day for ...
Disease Awareness
World Alzheimer's Day - 21 September - Also my Dad's Birthday
World Alzheimer’s Day – 21 September – Also my Dad’s Birthday
Today is World Alzheimer’s Day, and also my dad’s 81st birthday. Unfortunately, these two events are linked by more than just sharing a date, as my dad has been living with Alzheimer’s for ...
Disease Awareness